You may want to attempt to read the article before pontificating on the child's quality of life. She has a normal, fully developed brain, and there was no mention of mental or developmental abnormalities besides the difficulty she suffers from her deformity.

This condition is not co-morbid with retardation or lack of brain development. From the National Craniofacial Association (emphasis mine)

"Most children with Treacher Collins have normal development and intelligence; however, it is important that there be early hearing tests. Most children with Treacher Collins Syndrome benefit from early intervention speech and language programs."

http://www.faces-cranio.org/Disord/Treacher.htm

You may also want to meet this "stillbirth", who has the same genetic deformity (though a less severe case) and was at the time of the writing a third-year medical resident:

http://www.treachercollins.org/main.html