Six doctors were unable to correctly diagnose common disease

Discussion in 'Health Care' started by kazenatsu, Jun 30, 2024.

  1. kazenatsu

    kazenatsu Well-Known Member Donor

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    This story shows that we should be reluctant to place all our trust in doctors, just because they are "experts".

    She had to go to seven different doctors before one of them was finally able to correctly diagnose her with a condition that wasn't even that rare!

    It took 7 doctors to diagnose me with a common disease that almost killed me

    "You're homesick and probably depressed," one doctor told me when I saw him for severe exhaustion and brain fog. Shortly after, I began hallucinating.

    Over the course of the next year, I would schedule doctor’s appointment after doctor’s appointment in search of answers. During that time, I would grow steadily sicker. My hair would fall out in chunks. I would become too exhausted to practice my viola, then so exhausted I could barely walk down the hallway of the music building to my classes. The brain fog would intensify until I was incapable of even following the directions on a packet of instant oatmeal, then eventually spiral into psychosis. By the time I was finally diagnosed with a common and well-known autoimmune disease, lupus, I had been walking, driving and attending class with severe inflammation in my brain for over a year.

    Most lupus patients experience fatigue, joint pain and a butterfly-shaped rash across their cheeks and nose. I suspect my lack of joint pain or facial rashes contributed to my case of lupus being more difficult to diagnose. Because lupus is an invisible illness, I never looked sick, even when I felt like I was dying.

    An estimated 1.5 million Americans live with lupus, and 90% of lupus patients are women.​

    It took 7 doctors to diagnose me with a common disease that almost killed me, Meghan Bea, Today (news) on NBC, July 18, 2023

    older related thread: Hawaii woman who bleeds from eyes and tongue is desperate for answers (posted by Anders Hoveland in 'Health Care' section, May 19, 2015 )
     
  2. modernpaladin

    modernpaladin Well-Known Member Past Donor

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    Lupus isn't easy to diagnose. It may be common, but it also presents with a wide range of symptoms that are common to other illnesses. No two cases of lupus are exactly alike.

    Though you're point remains valid- we should be reluctant to place all our trust in doctors. They can -and often are- wrong. Its always best to get a second opinion, do your own research, and these days, run your symptoms through an AI and see what it says.
     
  3. Bowerbird

    Bowerbird Well-Known Member

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    SLE is an uncommon auto-immune disorder and not routinely screened for since the diagnosis relies on fairly unusual laboratory tests.
    https://www.ncbi.nlm.nih.gov/books/...ith,severe central nervous system involvement.

    and yes the reason it is mostly women - lucky us!

    https://www.ncbi.nlm.nih.gov/books/...ith,severe central nervous system involvement.

    So this was a misdiagnosis - what is your suggestion we do about it?
     
  4. Bowerbird

    Bowerbird Well-Known Member

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    What is your alternative? Homeopathy??

    upload_2024-7-17_11-16-46.jpeg
     
  5. modernpaladin

    modernpaladin Well-Known Member Past Donor

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    Sometimes. But mostly I was saying don't just take the docs word as gospel. Look into it yourself too.
     
    Last edited: Jul 16, 2024

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